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149 Comments
Reply
Gail Benson
10:05 PM on October 30, 2011
It was so nice to meet you all. Amanda is so sweet. I am that I remembered your website!!
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Leigh
01:22 AM on April 25, 2011
I have a 2 year old son, JP, who has Dravet's. It is so comforting to read the stories of other families who are going through the same thing and who have older children who are doing so well. It give me hope.
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Page Wolf
11:19 PM on March 03, 2011
After that wonderful warm goodbye hug I got from your precious daughter on Sunday, I found myself wishing I could have talked more with you that night about her and gotten to know her more! So, I went to your link to learn. What an amazing journey you've had. She is such a lovely, sweet girl. I will keep her in my prayers that a cure will someday be found!
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Lori Dobbs
07:33 AM on March 02, 2011
Mandy's website is wonderful. You all will be in our thoughts and prayers!
Lori and family!
Lori and family!
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Elle May
10:31 PM on March 01, 2011
I love you all! Get well soon, Mandy! I've been praying for you and your family.
Love you so much!
~Elle May
Love you so much!
~Elle May
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justin
10:36 AM on February 07, 2011
hi every one. i love the website 
my son cole has dravet he is 4 and we are from uk. we are due to start the keto soon. thank you for this lovely website. xx justin
my son cole has dravet he is 4 and we are from uk. we are due to start the keto soon. thank you for this lovely website. xx justin
Have you got an email address the one above bounces, I have a couple of questions regarding the diet your duaghter is on?
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Modotly
04:28 AM on January 14, 2011
http://criworukov.narod.ru/skachat-besplatno-operu-dlya-nokiya-52
30.html ñêà÷àòü îïåðó íà òåëåôîí íà ðóññêîì ÿçûêå http://criworukov.narod.ru/skachat-operu-na-telefon-nokia-5250-be
splatno.html îïåðà ìèíè äëÿ íîêèà n97
30.html ñêà÷àòü îïåðó íà òåëåôîí íà ðóññêîì ÿçûêå http://criworukov.narod.ru/skachat-operu-na-telefon-nokia-5250-be
splatno.html îïåðà ìèíè äëÿ íîêèà n97
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minal
03:12 PM on September 10, 2010
I have a son he will be 2 years old on Sept 19, 2010. He has been diagnosed with tuberous sclerosis with infantile spasms. But now reading about Amanda's seizures it feels my son is having similar symptoms. Does your daughter talk? when did she start talking. My son doesn't say a word or babbles. We have tried so many different drugs but seizures are not controlled. We are vegetarians so I don't know what kind of diet would work. I would like some feed back about the helmet and other drugs that you have tried for your daughter. Thank you.
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zexdremyforry
01:07 AM on September 05, 2010
t's such a tickety-boo site. fanciful, very fascinating!!!
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Gry Gry
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Gry Gry
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